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| Comments by
Ashley A
on
Wednesday, June 29, 2011 |
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I would just like to say, I am so glad that there are parents such as yourselves that dedicate their time to helping other parents and family memebers through their time of need.. Even with out meeting them face to face. I am an SCT survivor my self and never fully understood this until recently when i was talking Anatomy and Physiology for Nursing school. WOW... i cant imagine what it was like for my family back in 1984. So I truly hold you and Elijah in a very special place in my heart!!! As well as of other the other child that did or did not make it thorough their battle. Thank you for your time.. Just know that i am currently 27 years old and i have three children of my own. There is life beyond this!! I am proof.... May the Lord continue to bless you and keep you and your family forever!
_Ashley Artiaga
SCT Survivor-1984
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| Comments by
Marianne
on
Saturday, February 05, 2011 |
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| Our Daughter was born with a sct. I delivered her at 38 weeks c-section. Her tumor was removed at 1 day. At 16 months of age her tumor had returned and she underwent chemo and more surg. she is now a happy healthy 16 yr old! a year prior my husbands sister had a baby girl at 26weeks. Her daughter also had a sct. She will be 18 this July. She alot of scarring and is deaf and autistic. They are our little miracles!
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| United States |
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| Comments by
Arlete Kanode
on
Tuesday, February 01, 2011 |
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| Thank you so much for putting this site together. It gave me answers that I wasn't able to find any where else. It also gave me alot of hope during such a difficult time. We found out our daughter had SCT type I at 18 weeks. Unfortunately she past a few hours after delivery on 12/20/2010, we were only at 29 weeks.
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| United States |
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| Comments by
Julie Baker
on
Thursday, July 22, 2010 |
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| Hello, thank you for sharing your story. Our little blessing Daniel James was born on 7/4/08 with a SCT and also other problems. It was wonderful reading your beautiful boy's story. God Bless, Julie Baker
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| Australia |
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| Comments by
Jennifer
on
Saturday, July 10, 2010 |
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I just want to thank everyone for sharing there stories, I am pregnant with our first child and found out that our little girl also has a type III SCT. My husband and I have searched the internet for answers and information but there is limited of either so this site has been a great comfort to us. We live in VA but are currently planning to relocate to Philly so we can be closer to CHOP, they are a wonderful group of doctors, nurses and staff and have also provided us with some hope.
God Bless you all and thanks again for sharing your stories.
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| United States |
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| Comments by
Pam
on
Monday, July 05, 2010 |
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| Thank you so much for sharing your story. My brother's wife went for her ultrasound last Thursday at 20 weeks and was told that she was having a girl, but that she had what is suspected to be the tumor your son had. They live only about 40 minutes from CHOP and have an appointment this Thursday. Thank God for that. I feel that they are in the best place possible. I pray that they have a happy ending like your family. It really helped to read your story and know that there is hope! If you have any suggestions for us, please feel free to email me at pamela4@ptd.net. I would also love to hear an update on Elijah!
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| Comments by
MACDONALD MUPIWA
on
Monday, June 21, 2010 |
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| I HAVE NEWLY BORN BABY BORN ON THE 11TH OF JUNE 2010 AND SHE HAS BEEN DIAGNOSED AN SCT .I HAVE COMFORTED BY OTHER PEOPLES STORIES WHO WENT THROUGH MY PRESENT POSITION.I REALLY APPRECIATE THIS SITE AND I REALLY BELIEVE SHE WILL UNDERGO A WONDERFUL SURGERY AS I AM PRAYING I WOULD BE ALSO LOOKING FORWARD FOR MORE SUPPORT FROM OTHER PARENTS LIKE ME.
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| Botswana |
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| Comments by
Clara Moore-Miller
on
Monday, June 14, 2010 |
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| Thank You for all you do bringing SCT families together I am the mother of a SCT baby who has survived and for four years i was told my son had a HEMANGIOMA we called it his tail we finally found out this jan,that it was a SCT and how grave this can be IT was Removed FEB 1 and it was tested and not malignant He is doing very well and very active.Again thank you for giving us a place. Clara Moore-Miller.
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| Comments by
Sarah Derbyshire
on
Wednesday, April 07, 2010 |
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| My husband and I have a little boy who was born on the 9th of August 2005.He was born with a large SCT that weighed over 2lbs .He is well apart from a few minor problems ,we still see his surgeon regularly and cannot thank him enough for what he did for Luke as the prognosis was horrendouse
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| United Kingdom |
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| Comments by
Sue ingham
on
Monday, April 05, 2010 |
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| Hello there, I was diagnosed last week with SCT, my baby id only 13 weeks gestation. I have been thrown into a very scarey place and feel terrible about what might happen. I am also being encouraged to go down the termination route as I am a single mum: the father left. My email is: sue.ingham@mac.com if anyone would be prepared to share their stories. Sue x
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| United Kingdom |
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If you have any questions, suggestions or comments or otherwise want to talk,
please email me at dad2elijah@yahoo.com
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