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Comments by Jimmie Teague on Friday, September 12, 2008 IP Logged
My son Luke had a type IV sct removed when he was born. He is now 19 months old and yesterday the doctors found a small mass in his pelvic area they are not sure what it is yet. We have been doing an AFP test every 3 months with good results but this time the level did not come down it stayed at 5.4. We see a oncologist on Monday but we have to wait all weekend to hear anything. What does this mean please help. Does the mass in the ultrasound and the AFP staying the same mean the tumor is back?
United States

Comments by Kate Leko on Thursday, September 11, 2008 IP Logged
Thank you so much for your story. i can't tell you how many times i read this during my pregnancy. my baby was born in june with a very similar SCT also on a stalk. She is now 10 weeks old and doing fine. you don't know what a comfort it was to know that there is someone else who has been in your position.
United States

Comments by Rebecca on Friday, July 18, 2008 IP Logged
Hi, My son was born in Dec 05. We found out at the 22 week scan (i thought i was having twins-i could feel 2 heads-or so i thought!). He had his teratoma removed within 24 hours of birth. it was approx 1lb in weight, about the size of his head, largely cystic and external. Thanks to the work of a very clever surgeon he has even developed butt cheeks!! Other wise he is totally healthy and i thank God daily for him and his surgeon. This is an excellent site and i wish i had found it before i had my son - thank you!
United Kingdom

Comments by Serge' Lewicki on Friday, July 11, 2008 IP Logged
Thank you so much for making this website. I am currently 36 weeks pregnant and 3 days. My C-section is scheduled for July 22, 2008 and my husband and I are hoping for the best. My baby girl was diagnosed with a Type II SCT when I was 20 weeks pregnant. My OBGYN gave me a less than 10% chance of survival and gave me the recomendation of termination. My husband and I both felt that if God was going to take her, he would do it on his own time, so we stuck out the pregnancy. I have been traveling one way about 150 miles twice a week to see a team of specialtlists in Houston, TX who are currently taking care of me and my baby. We have been very fortunate to have made it this far in the pregnancy. The teratoma is currently 1/3 the size of the baby and she already weights 6lbs on her own. The tumor is mostly cystic with some solid components. Please pray for my baby's safe delivery and surgery. Thanks so much!
United States

Comments by Debbie on Monday, June 30, 2008 IP Logged
Thank you for sharing Elijah's story. My 3 year old son was just diagnosed with SCT --- Stage 3 Malignant (because of the late diagnosis). I have faith that he will be well after his chemotherapy treatments. All the best and God Bless, Debbie
United States

Comments by Resa on Monday, May 19, 2008 IP Logged
I too, am about 5 months pregnant (26 weeks today) and found out on Friday, May 16, that my daughter has an SCT. I am looking for every shred of information I can find about it. I am due on August 25.
We lost our last baby to a congenital heart defect on March 4, 2007 called Hypoplastic Left Heart Syndrome. We had Graydon for 3 days.
I'm beginning to wonder if we are somehow some kind of lightning rod for rare congenital defects! What the?
Thank you for writing about your experience with Elijah. It's really helped me.
United States

Comments by kayla on Wednesday, May 14, 2008 IP Logged
thank you so much for making this site. im 5 months pregnant and just found out today that my baby has a tumor. I feel so much better knowing there is hope for my baby! thank you so much
United States

Comments by Kveta Smith on Monday, May 12, 2008 IP Logged
Reading the story of Elijah has given me so much hope. I am 6 months pregnant and my baby also has a SCT.
I just pray that i too have a really good result when my baby is born.
Australia

Comments by Shamis White on Tuesday, April 01, 2008 IP Logged
Our daughter was born at full term and diagnosed with a SCT during her first day of life. Reading your story brought up so many hard memories. Eibhlinn is doing fine now but the monitoring continues monthly. It is so wonderful to read other stories and feel less alone.
United States

Comments by Kate Leko on Monday, March 31, 2008 IP Logged
i am 25 weeks pregnant right now and my baby has the same thing. At first the doctors thought that it was bladder exstrophy at our 20 week ultrasound because it was laying on the abdoman. then at 24 weeks we went back and discovered it was on a stalk and able to move around and was sct. Seeing your story makes me feel so much better with what i am facing.
United States

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